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The BMBH Registry

Helping to increase the representation of Black men in scientific research.

Black men are historically less likely to participate in research studies.

We understand why.

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Black men are less likely to receive guideline-consistent care and be included in research.

Black men are more likely to receive a misdiagnosis of schizophrenia when expressing symptoms related to mood disorders or PTSD.

Black men's risk of a stroke is twice that of White men.

African-Americans tend to be diagnosed at a later stage of Alzheimer’s disease — limiting the effectiveness of treatments that depend upon early intervention.

Four in 10 Black men aged 20 or older have high blood pressure, a rate 30% higher than White men.

But underrepresentation has its consequences

When our voice isn't heard, our pain is felt. The BMBH Registry aims to improve outcomes for Black Men by making it as easy as possible for researchers to study the unique problems faced by Black Men.

Help speed up important discoveries with the BMBH Registry.
It starts with a few minutes of your time.

If you are 18 years or over, you can help the BMBH Registry speed up the discoveries for treatments for brain injuries, Alzheimer’s, Parkinson’s, depression, PTSD, other brain-related issues, and for positive health. It takes just a few minutes to get started. For most people, participation takes less than a couple hours per year. The steps are easy to follow:

1

Tell us about yourself

Tell us who you are, how we can reach you, and answer a set of questionnaires about your sports and research study participation history. This only takes about 10 minutes.

2

Invite a study partner

Ask a friend, family member, or spouse to join the Brain Health Registry as your study partner. Study partners answer questions that help us gain a more complete understanding of brain health, including information about your brain health, day-to-day functioning and quality of life. If your study partner is a caregiver to you, they will also be able to answer questions about their experience as a caregiver.

3

Stay in touch for opportunities to contribute!

We'd like to contact you with specific research projects that you might be interested in. We'll send you emails periodically to invite you to Black men's brain health research projects that are relevant to you.

In all cases, and with all steps, we respect your privacy. The information you share, and the data we collect from questionnaires and online tests, will be kept confidential.